parker

    Blink 182's Travis Barker In Critical Condition!

    Saturday, September 20, 2008, 03:37 PM EST [General]

    Unfortunately its true.  Drummer of Blink 182 Travis Barker was injured, among others, and several people were killed when their plane went down.  For those not familiar, Barker is a hell of a drummer and musician in general, had his own MTV reality show a couple years ago, and is famous also for basically having his entire body covered in tattoos.  Check out the story here:

    http://music.yahoo.com/read/news/61713696

    Hope those injured are okay! 

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    entourage!

    Tuesday, September 9, 2008, 10:40 AM EST [General]

    new season of entourage started sunday night!  this is my favorite show ever ever!!  does anyone else watch it?  its about this famous actor from new york and his 3 best friends that all move to LA and live the life.  pretty sweet.  this show is solely responsible for making me want to move to cali and try to get into film.  check it out sundays on hbo @ 10pm! 

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    I Have A Dream

    Thursday, September 4, 2008, 03:00 AM EST [General]

    So wow, I just had a crazy dream.  It must be all the pics from Ken's trip, but I had a dream that my friend had conviced me that we should get a couple of rowboats and row from the coast of Africa to the Galapogos Islands.  Yea, I know.  And these weren't even rowboats, they were more like the makeshift thing that Tom Hanks rode on Cast Away when he left the island.  And I was planning on rowing several thousand miles.  Even in a dream, once I got on the thing, this seemed like a horrible idea.  All I could think about was sharks trying to eat me... I think I have a phobia.  Anyways, I just thought I'd share that with everyone.  Thanks for the nightmare Ken.  : )

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    Narcolepsy Study

    Saturday, August 30, 2008, 04:24 PM EST [General]

    So I had my first meeting with Dr. Nelson.  He is the doctor at Samaritan at University of Ky that is conducting the study I'm taking part it.  The study is designed to find out more about the brain's behavior during fainting and how REM sleep factors in to it.  Since I have narcolepsy and spend like 3 times as much of my sleep in REM as normal people, I'm a perfect subject for him to use.  We havent gotten much into the actual study yet, just testing equipment and working out kinks in the technique.  He seemed very excited about it though and wants me to come back in a week or so.  Expect to hear more then...

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    Narcolepsy!

    Wednesday, August 20, 2008, 09:48 PM EST [General]

    So, I'm new to the site.  I just signed up yesterday.  I was hoping this would be a good way to meet other people with narcolepsy and discuss it.  I was diagnosed in 2006.  At the time I lived and worked in Louisville, KY at a mortgage company.  The stress was getting to me of working long days for 100% commission.  I started having frequent attack of cataplexy, but at the time I didnt know what it was.  Turns out it is a dead giveaway that one has narcolepsy.  Cataplexy is a sudden involuntary loss of muscle tone when one experience a sudden change like laughter or excitement.  Its like the helpless feeling of being tickled, plus it looks like youre passing out so its kind of embarassing.  Make that extremely embarassing.  Additionally, I was starting to have sleep paralysis a lot.  Thats a fun condition.  It consists of your body awakening while your brain is asleep, and results in you lying there in your bed, half awake half asleep, unable to move and having vivd hallucinations like a hippy at woodstock.  Seriously, I think people would pay big money to trip like I do naturally.  It usually looks like I can see something out of my peripherals, think predator with his invisible camoflouge on, moving around or creeping up next to me and talking in my ear.  Sometimes, when positioned where I cant really look around, it literally feels like something is crawling in bed next to me, scooting right up next to me, and whispering sweet nothings in my ear, usually about killing me and/or me going to hell.  And since your brain is literally dreaming with your eyes open, it all seems very real but you cant convince your brain its just a dream.  Scary stuff, really.  So I'm prescribed Provigil to help me stay awake and Xyrem to help me sleep uniterrupted through the night.  Both work okay, but the provigil makes me poop and also makes me lose my appetite for the next 8 hours or so.  No complaints about the xyrem (liquid manufactured ghb) except the taste (kind of like I'd expect urine to taste).  I had to quit that job since I couldnt handle it physically or mentally and I moved back to lexington and now work a job that requires me to be on my feet, and thus more attentive usually. 
    A few months back I was reasearching some stuff about narcolepsy online and came across a doctors name at the university of kentucky, which I can practically see from my front porch, and how he had done some type of research on the disease.  Although he's a neurologist, I figured it couldnt hurt to call him.  He was excited to talk with me and I met him at his office where he kicked me the idea of being in a study he was proposing at the time to a medical board.  The study involves studying how the brain works with REM sleep when one faints or passes out, and I was apparently a prime candidate since narcoleptics spend roughly 3x as much of our sleep in REM mode.  His study has since been approved and we should be proceeding with the expirement any day now (the equipment hes using is new to him and hes making sure its all working properly before we proceed- we want to do this right).  I'm happy to do it because 1) I'm getting paid for it and 2) anything to learn more about my disease, which seems virtually unresearched according to what I've read up on it.  Every site says the same basic things. 
    So, anyone else need a nap?

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