Well my neice has finally made some movements today and even tried to speak......YA!!!!

Baby steps...we still dont know what they are going to do next, since the answer is alway "we don't know" they have never run across this. In my first blog I shared that my niece had endoscopic brain surgery, but the mass was not a cyst but part of her brain growing out side of brain. I have spoke with people that say their family member had the same thing and yet it was a tumor, mimicking as brain matter.

Can this be it, a disguise? Can it be removed as they stated a couple of days ago, if it continues to grow?  They didn't remove it in the first place because it is brain matter as they stated. Should they and the bigger question is will she let them after this?

We have a family meeting with the doctors tomorrow, but still searching for case studies out there if anyone has some feedback.

Thanks,

 My problem is I'm looking for medical journals on brain surgery...and any cases related to a part of the brain that would be growing off the main central brain that might have been mistaken for a tumor or sist. You see my niece went in for brain surgery yesterday 6/16/08  for a sist removal, but it turned out to be part of her brain that had grown in the path of one of her ventricle veins (I'm not sure on the spelling) she was no doubt born with it they say. She was suffering from migraine headaches. Due to this new problem they did not remove it, but have never come across anything like this before. She has yet to wake up and there are major concerns from the doctors. Where can I find medical journals that may have  similar cases? The doctors are doing their research, but they are also busy trying to keep her stable. They now say she may have bleeding in the back of the brain, and that is preventing her from waking up. She can not open her eyes, and they do not respond to any light. She can not speak and can olny move very little, she is non-responsive. Has anyone ever heard of such a thing as part of the brain grow as if a tumor?

Any solutions or suggestions would be greatly appreciated.

Thank you,

Angela Hawkins